Sunday 1 November 2020

When type 1 diabetes and an eating disorder collide.

 If you are regular reader of my blog you will know that I will always try and make it light hearted, well as much as living with 3 people with type 1 diabetes can be!! This is not going to be one of those posts. That said this past year, like for everyone else in the world has  it been great. Thankfully we got through the first wave of COVID unscathed and I hope the same can be said as we enter the second wave. 

The original lockdown in March allowed us as a family to eat around our dinning room table together , something we had only managed to do at weekends. We spent more time together, we managed to not kill each other!!! Which, let me tell you when there are seven people all living together and spending that much time together is no easy feat!! I started to work on improving my fitness again as I had been given this great gift of time and my T1 daughter started to workout more. I encouraged this as we did it together and she seemed to be enjoying it. 

However, after a while there was a noticeable shift in what she was doing. Her workouts became more frequent, three times a day after every meal and increased in length. She decided that she was not going to eat after 7pm, which was not a concern to me as many people intermittent fast. What it did do however was shift dinner to 5pm, and she became quite insistent that we ate at that time. 

As lockdown continued throughout the summer her body was changing and she was becoming stronger. Her determination was fierce as she had a plan and knew what she wanted to do. From a mother’s point of view there was little concern over what she was doing as I could see that she was eating alongside her exercise. As September approach I begun to talk to her about going back to school and what that would mean for her routine. She wasn’t quite sure what she was going to do but didn’t seem that worried about it.

September arrived, I went back to work, and the children went back to school. At this point I’m not going to go into great detail as I’m not going to betray my daughters trust. She doesn’t necessarily volunteer information to me, but if I ask her an outright question she will tell me. 

She hasn’t been eating breakfast and lunch she only eats dinner. If dinner looks like it may go past 7pm she refuses it. She weighs herself when she gets up, home from school and again before bed. She will work out how many calories she has eaten in the day and then workout to get rid of them. From a diabetes point of view she has been turning her pump down as she doesn’t want to go as that would mean she needs juice or glucose tablets and she doesn’t want the additional calories. The problem with that is that by running her sugar levels high she risks complications.  The saving grace here is that due to her having diabetes we have access to the dietician, who my daughter has a fantastic relationship with and we have access to the psychologist. I am pleased to say we have had conversations with both and have started the ball rolling in getting her some help with an eating disorder team. With a condition which in order to control means you have no choice but to look at the back of the food packages of every single thing you eat is no wonder so many young people with diabetes also develop eating disorders. That’s without the continued bombardment of diet adverts and filtered pictures on social media. I also have to take some responsibility for this, I constantly complain that I’m too fat, I weigh too much and that I have nothing to wear. This is especially true as like many I have gained some COVID weight. However when we are being so critical of ourselves we need to remember who may be listening.

The road we are currently on is going to be long, and it’s going to be hard for everyone but we must take it so that I can hopefully get my happy daughter back.


Saturday 21 March 2020

Corona Virus - what it means for us...

Before I start I want to make it clear that this is what has been going on in MY house, I am not telling anyone what to do apart from the obvious STAY INSIDE.

I will admit like many when the news of this virus started I didn't think it was anymore serious than a bad case of the flu. I was fully aware that in my house of seven there are four who are more vulnerable. My mother in law is 76 and has COPD and ITP; my husband has type 1 diabetes and due to a case of pleurisy a few years ago shadows on his lungs; Samuel has type 1 diabetes as does Victoria. However, we still went about our business, that was until Sunday (15/03/20), there must be something about that date as it was 11 years ago on that date that Samuel was diagnosed. After dinner Samuel declared that he wasn't feel very well, he felt sick, that usually means that he has ketones (which can be extremely dangerous, can lead to DKA, which can be fatal)  so he checked and yes he did. So we did what we always do in this situation and they eventually came down. The following morning he still felt off and had developed what I can only describe as a barking cough, along with a side order of ketones. I went off to work and left him in bed, the husband had been up during the night being sick so he was also in bed. I called our diabetes team for some advice and when I mentioned the cough she told me to keep him isolated. I called his school to tell them that he was off, I mentioned the cough and was told that I should probably keep him off for the recommended 7 days.
Tuesday - Samuel was still coughing but minor ketones, husband was still being sick, and off I went to work, the girls went to school and college. 8:45 I am told that I shouldn't be in school as I and the rest of my household should be self isolating for 14 days. I phone the secondary school to tell them that Samuel is still not in. I am then advised to definitely collect Victoria, I ask about Elizabeth and am then told to come and collect them both which I do, then on to the college to collect Olivia. I then inform her that she can't leave the house for 14 days which means she can't go to work nor can she see her new boyfriend!! (I will leave up to you to imagine how that went down, it was not pretty)
Wednesday - Samuel still coughing but no ketones, husband still being sick and Olivia still furious! However, my kitchen cupboards are looking lovely and clean! Then..... I am informed that because I live in a vulnerable household I am not allowed back to work for 12 weeks!!
Fast forward to Friday evening when clubs, pubs, cafes etc are to close, schools for us are closed until further notice, and social distancing is a must!!!! But some people are not listening, yes I know you may feel ok, are young and healthy but you can still carry the virus and pass it on!

In a time when many only think of themselves please do the right thing! I have four vulnerable people living in my house!

STAY INSIDE!!!