Today both Victoria and Samuel had their diabetes clinic appointments at UCLH with The Prof. This was Victoria’s first appointment so I was slightly nervous for her.
Before I talk about the appointment I want to go back to 13 weeks ago when she was first diagnosed. I’d decided that because I was quite laid back with Samuels care, got slightly complacent with it that the ‘diabetes gods’ were teaching me a lesson by imposing this condition on another one of my children. Sort of ‘this will make her sit up and notice us’ type of thing. Which I know is completely ridiculous!!
Anyway, once Victoria’s care was taken over by the UCLH team and she was given her pump I came away with brand new updated guidelines which I decided to implement on Samuel as well as Victoria. I was met with some resistance from Samuel who said ‘everything was working completely fine before, I don’t know why you’ve had to change everything!’ He was being quite dramatic as this is what I changed...
We bolus 15 mins before eating, which gives the insulin a head start on the food.
Every dinner (not just pizza and pasta) we now put on a dual wave. Although we have since started to that for lunch as well.
Now that I’ve finally got Carelink to work I upload their data each week and spend time looking at trends.
I feel much more confident tweaking the pump if I need to.
I regularly night test again (I’d got lazy)
For the last couple of weeks Samuel has had in a sensor. (Victoria only got hers Friday)
So....clinic today and the dreaded HbA1c result, is parents always feel like we are being judged on this number. Since Samuel was diagnosed 9 years ago we have never seen a number below 8.2, even being under the care of The Prof...
Today Samuels was 7.6!!!!! Victoria 7.2!!!!!!
I couldn’t believe it, and the boy had grown another 2.5cm since the last appointment!
The hard work is paying off!
There was also talk of applying for sensors full time so we shall see how that goes and I find it so much easier when he has one.
I hope he qualifies for a sensor. I woudl give up my pump before my sensor. The pump is helpful, the sensor is mandatory in my book.
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