Tomorrow is Samuels diabetic birthday. We have reached year number 4, and we are now at the point where he has lived with this condition for the same amount of years as without.
There has been big changes in the last year, we moved his care to UCLH, and he now has an insulin pump. We are only six months in with the pump but we can see the different, he has less mood swings and is more like the 'old' Samuel. Don't get me wrong, we have had some downs as well, bent cannulas, and ketones, but I am pleased that we made the change.
I don't usually get emotional around the D day, but I was sitting on a bench in the school field watching Samuel play football with nine other boys. He had such a big smile on his face as he loves football, and all the time I was sitting there, freezing, I might add, and for the first time I was thinking that in my pocket, no bigger than my phone is his pump. The battery operated machine than keeps him alive, and it made me feel really sad.
To watch him play you wouldn't know, and his friends don't treat him any different, but I know, I know that at any point his levels could drop and he would have to stop. That we are the only parents that stay because we HAVE to, not just because we want to. It doesn't matter him though, he just gets on with being an 8 year old boy.
We are four years in and have learnt so much, but there is still so much to learn, and learn we will until maybe one day we won't have to because the cure will have been found.
Hope is in a Cure!!